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Access to data from CONOR



Who can apply for access to data and biological materials from CONOR? Do rules for publication apply?

CONOR was established for the purpose of revealing the causes of rare diseases – using case-control studies – with disease or death as the endpoint. CONOR consists of questionnaire data, measurements and biological samples from different health examinations. 

What is a CONOR project?

A CONOR project is a project which uses data or biological materials from CONOR (when both are used, the term CONOR materials will be used) from two or more of the collaborating parties.

Applying for access to CONOR material

The guidelines and application forms for applying for access to data can be found here:

When you have selected the variables you wish to include in the dataset, an Excel file will be generated that you can send as an attachment to the application for access to data.


CONOR has four application deadlines per year: 15th January, 15th April, 15th August og 15th November. Applications will be processed by the case manager and the CONOR steering group. Normal processing time is 30 days after the application deadline.